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What you need to do “first” when diagnosed with Parkinson’s.

December 26, 2016

All the things you need to do “first” when diagnosed with Parkinson’s.

1 You need to find the inner strength to stay positive.

1 You must force yourself to put aside your denial, shock, anger, bewilderment, and shock (worth saying twice) at least enough to stay functioning so that you can do the remaining  “firsts”(you can always go through the five stages of grief at your leisure after doing what needs to be done first).

1 If you are still working, find a good employment attorney (who knows the ADA, FMLA and lots of other acronyms) to help you decide what, when, how, etc. to inform your employer.

1 Do lots of research before telling your family so that you can answer many of their questions and help them remain relatively calm.

1 Schedule an appointment with your financial advisor (I lived it, retiring at 48 years young). You may need to start simplifying your life and turn the expenses faucet off sooner than you think.

1 Find a Parkinson’s support group in your area and get the lowdown on who the best “Movement Disorder  Specialist” there is in the area (you will learn soon enough what that means).

1 Now put together an initial PLAN with specific action steps: healthier diet, increased exercise (try boxing), deep tissue massages, yoga (yes, yoga – “Its not that I feel bad when I miss yoga, its that I feel bad when I miss yoga.”)

1 You need to find the inner strength to stay positive.

 

Testimonials

I do not have the words to thank you enough for making the trip to Dallas to do two presentations for us at CC young. You truly are special and a rockstar and clearly touched many lives today. It is a victory! I was able to run all over campus and welcome guests and host you. It was a victory. Thanks to you for helping me think that way. We will catch you on the next round. Get some rest my friend. Safe travels. And know we love you from CC Young and Dallas!

Patty CC Young and Dallas

“After two years of not being able to hear speakers in person , I was thrilled to have John Bauman as a speaker at our “ Living Well With Parkinson’s’ Gala!. Not only was John engaging and inspiring to get to know off stage , on stage he truly drove home the theme of empowerment to our audience and left our growing community of attendees with several “ aha “ moments and desire to hear more. He spoke from personal experience as a Parkinson’s patient ,inspiring the audiences motivation to truly wish to make a difference and uniting us all in our humanity. Attendees after listening to John , felt inspired to make a difference in the world and do their part to create change for those living with Parkinson’s. My only regret was not being able to spend more time with John and I look forward to having him speak again to our audience.”

Naomi Wong WPP Program Manager

John’s message of hope, inspiration and laughter was ideal for anyone living with PD. He was extremely flexible and a delight to work with.

Leisha Phipps, MSW Program Director - Dallas Area Parkinson Society

We all felt inspired and enjoyed listening to your presentation. Even though we are not living with Parkinson’s, we felt boost of motivation to continue helping those who are living with this disease. I am motivated to make more personal phone calls to people living with PD and asking how they are doing. Sometimes that “extra” bit of kindness truly makes a difference to someone. I am also motivated to research program ideas and partner with other organizations that may have similar values.

I learned that life is unexpected and that you cannot control it. What matters is your attitude!

-Great way to end the day, brave man, thank you very much!

-Good, excellent, great, outstanding speaker, very moving!

-Inspirational who just “gets it”

-Positive thinker and very funny!

-Honest speaker but also humorous!

Parkinson’s Society of Southwest Ontario, Canada, Symposium Keynote Presentation

“whatever hand life deals you, whatever life changing adversity you have to endure, you still have some control over it.” “You don’t have to just to live well,” he advises,” but live an Amazing Life.” The formula he proposes: Faith in yourself, discipline, determination, desire, intensity, and inner strength.

MARY SPREMULLI VOICE AEROBICS

Yes, you touched every person at our conference, who will in turn change and impact so many others. The feedback from our participants was overwhelmingly positive. You are the only speaker to ever receive a standing ovation. Thank you for taking time to share, motivate and inspire. We are blessed to know you.

DIRECTOR OF MARKETING REHABILITATION HOSPITAL

I will be honest. During the first 10 minutes of your presentation, I started reading work related material on my laptop. For surely, I had watched your You-Tube and seen your videos and knew what to expect. Surely, as a therapist I had studied this disease, the pathological components, the psychological components, the treatment alternatives……..Surely, I understand it.

Not so much. You caught my attention and I was enthralled. You were able to couple the impairments you experience with the emotions felt. You walked us through your life with the disease through “your eyes”. A perspective that a therapist/nurse rarely has the chance to hear. We get so busy telling patients how to deal with x, y and z, but our eyes are blurred by the science of it all most of the time.

You did it through truth, Through your humor, humility and determination to tell your story. One that most deservedly needs to be shared.

I will advocate to have you share your story. I appreciate your determination, diligence and dedication.

CHIEF EXECUTIVE OFFICER REHABILITATION HOSPITAL