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Parkinson’s Superstar Nomination

April 12, 2012

John Baumann from Louisville, KY
Nominated by Irene Litvan

My Parkinson’s Superstar has to be John Baumann, one of my favorite patients. Diagnosed in 2002 at the age of 41, John worked 6 more years as an executive officer of a major corporation before dedicating his life, on a full-time basis, to making a difference in the Parkinson’s community.

John has inspired those with Parkinson’s to live their lives to the fullest, family care partners to realize what a difference they make and how much they are appreciated, and professional healthcare providers to maintain their passion and commitment to the cause. John has traveled far and wide as keynote speaker at symposiums to bring his message of hope and positive perspective (Reclaiming Posi-spective) including, among other locations, Cincinnati at the Sunflower Revolution, Indianapolis before a Pacers game, Houston, Birmingham, Saskatchewan in Canada, St. Thomas of the Virgin Islands and even his hometown of Louisville.

John has also written a book providing a template for others to live life to the fullest with Parkinson’s Disease, Decide Success (Twelve Action Steps) – You Ain’t Dead Yet (available at Amazon.com). John has contributed to two other books (The Peripatetic Pursuit of Parkinson’s Disease and Courageous Stories of Inspiration), is a graduate of the PDF clinical trail advocate institute and is on the faculty of the University of Louisville. John is also Chair of the Make-A-Wish Foundation Board in Kentucky and has cherished being care partner to his daughter (who has flourished despite being born with life threatening birth defects and cerebral palsy).

Testimonials

“After two years of not being able to hear speakers in person , I was thrilled to have John Bauman as a speaker at our “ Living Well With Parkinson’s’ Gala!. Not only was John engaging and inspiring to get to know off stage , on stage he truly drove home the theme of empowerment to our audience and left our growing community of attendees with several “ aha “ moments and desire to hear more. He spoke from personal experience as a Parkinson’s patient ,inspiring the audiences motivation to truly wish to make a difference and uniting us all in our humanity. Attendees after listening to John , felt inspired to make a difference in the world and do their part to create change for those living with Parkinson’s. My only regret was not being able to spend more time with John and I look forward to having him speak again to our audience.”

Naomi Wong WPP Program Manager

John’s message of hope, inspiration and laughter was ideal for anyone living with PD. He was extremely flexible and a delight to work with.

Leisha Phipps, MSW Program Director - Dallas Area Parkinson Society

We all felt inspired and enjoyed listening to your presentation. Even though we are not living with Parkinson’s, we felt boost of motivation to continue helping those who are living with this disease. I am motivated to make more personal phone calls to people living with PD and asking how they are doing. Sometimes that “extra” bit of kindness truly makes a difference to someone. I am also motivated to research program ideas and partner with other organizations that may have similar values.

I learned that life is unexpected and that you cannot control it. What matters is your attitude!

-Great way to end the day, brave man, thank you very much!

-Good, excellent, great, outstanding speaker, very moving!

-Inspirational who just “gets it”

-Positive thinker and very funny!

-Honest speaker but also humorous!

Parkinson’s Society of Southwest Ontario, Canada, Symposium Keynote Presentation

“whatever hand life deals you, whatever life changing adversity you have to endure, you still have some control over it.” “You don’t have to just to live well,” he advises,” but live an Amazing Life.” The formula he proposes: Faith in yourself, discipline, determination, desire, intensity, and inner strength.

MARY SPREMULLI VOICE AEROBICS

Yes, you touched every person at our conference, who will in turn change and impact so many others. The feedback from our participants was overwhelmingly positive. You are the only speaker to ever receive a standing ovation. Thank you for taking time to share, motivate and inspire. We are blessed to know you.

DIRECTOR OF MARKETING REHABILITATION HOSPITAL

I will be honest. During the first 10 minutes of your presentation, I started reading work related material on my laptop. For surely, I had watched your You-Tube and seen your videos and knew what to expect. Surely, as a therapist I had studied this disease, the pathological components, the psychological components, the treatment alternatives……..Surely, I understand it.

Not so much. You caught my attention and I was enthralled. You were able to couple the impairments you experience with the emotions felt. You walked us through your life with the disease through “your eyes”. A perspective that a therapist/nurse rarely has the chance to hear. We get so busy telling patients how to deal with x, y and z, but our eyes are blurred by the science of it all most of the time.

You did it through truth, Through your humor, humility and determination to tell your story. One that most deservedly needs to be shared.

I will advocate to have you share your story. I appreciate your determination, diligence and dedication.

CHIEF EXECUTIVE OFFICER REHABILITATION HOSPITAL