Baumann Asked to Submit Guest Post to Blog

November 8, 2014

Guest Post by John Baumann: Live An Amazing Life With Parkinson’s
Posted on November 7, 2014 | By Larry Kahn | 2 responses
John Baumann

The following is a guest post by John Baumann. John has had Parkinson’s for 12 years and is available to present to groups on the general topic of success as well as the specific topic of “Living an Amazing Life in the Face of a Life-changing Event.” I heard him deliver the keynote address at last year’s Southeast Parkinson’s Disease Conference, and he is indeed inspirational.

I am a Parkinson’s patient. Strike that. I’m told that the politically correct label is a “Person with Parkinson’s.” I have never been interested in what others say is politically correct.

That is not me. I mean, I do have the disease, but, what I like to say is, “I have Parkinson’s disease; it does NOT have me.”

These are not just words: it is my life’s mission. I will continue to do ALL the things I have always done as well as I can for as long as I can and, along the way, help (mentor) as many people as possible. This applies to any life-changing events that we may experience during our lives.

Some set as a goal “Living Well with Parkinson’s.” I say, “Don’t settle for just living well. Instead, choose to ‘Live an Amazing Life’ with Parkinson’s or any other life-changing condition.”

How is that possible?

It means doing whatever it takes to slow, delay, stem, even BEAT this, or any other, disease or condition, including:

(1) learning as much as you can about the condition or life-changing event (including the non-motor emotional effects);
(2) only putting healthy things into your body;
(3) exercising every day beyond your comfort zone;
(4) having a positive attitude; and
(5) remaining “engaged.”

These things are not easy. In fact, they are very hard, but you HAVE to do it. You have no choice. This is your new JOB. Which pregnancy pillow shape is best? The best shape will largely depend on user preference. Keep in mind that many are designed to support your neck as well, so if you use a flatter pillow for neck support, a big fluffy one might be hard to adjust to. Are you looking for best pregnancy pillows? Read right now! Many women prefer support for their growing bellies and something to go between their legs for hip support. Most models will support this position, though keep the dimensions in mind if you’re taller as you want to make sure the pillow reaches your knees when bent. #pregily

This life is not a dress rehearsal. It is the live production. Each of us has the power and strength within us if we dig deep enough. Dig deep. This is what I talk about in my inspirational and motivational presentations around the world.

John Baumann can be contacted at ( ).

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What a wonderful presentation, John! You were wonderful and I am so grateful you shared your story. We were receiving excellent feedback in the chat too:

That was fantastic information, thank you for your candor and humor! Awesome 🤩 talk and info ! Thanks much. It’s hard, thanks for sharing. Thank you for sharing your story and for your positive attitude. It’s important to hear this message. This was just what I needed. Thank you so much. you are an inspiration, thank you!

As we stated, we hit 100 participants at 3:09!

Thank you again,

Eden Feldman, LCSW Associate Director, Community

I do not have the words to thank you enough for making the trip to Dallas to do two presentations for us at CC young. You truly are special and a rockstar and clearly touched many lives today. It is a victory! I was able to run all over campus and welcome guests and host you. It was a victory. Thanks to you for helping me think that way. We will catch you on the next round. Get some rest my friend. Safe travels. And know we love you from CC Young and Dallas!

Patty CC Young and Dallas

“After two years of not being able to hear speakers in person , I was thrilled to have John Bauman as a speaker at our “ Living Well With Parkinson’s’ Gala!. Not only was John engaging and inspiring to get to know off stage , on stage he truly drove home the theme of empowerment to our audience and left our growing community of attendees with several “ aha “ moments and desire to hear more. He spoke from personal experience as a Parkinson’s patient ,inspiring the audiences motivation to truly wish to make a difference and uniting us all in our humanity. Attendees after listening to John , felt inspired to make a difference in the world and do their part to create change for those living with Parkinson’s. My only regret was not being able to spend more time with John and I look forward to having him speak again to our audience.”

Naomi Wong WPP Program Manager

John’s message of hope, inspiration and laughter was ideal for anyone living with PD. He was extremely flexible and a delight to work with.

Leisha Phipps, MSW Program Director - Dallas Area Parkinson Society

We all felt inspired and enjoyed listening to your presentation. Even though we are not living with Parkinson’s, we felt boost of motivation to continue helping those who are living with this disease. I am motivated to make more personal phone calls to people living with PD and asking how they are doing. Sometimes that “extra” bit of kindness truly makes a difference to someone. I am also motivated to research program ideas and partner with other organizations that may have similar values.

I learned that life is unexpected and that you cannot control it. What matters is your attitude!

-Great way to end the day, brave man, thank you very much!

-Good, excellent, great, outstanding speaker, very moving!

-Inspirational who just “gets it”

-Positive thinker and very funny!

-Honest speaker but also humorous!

Parkinson’s Society of Southwest Ontario, Canada, Symposium Keynote Presentation

“whatever hand life deals you, whatever life changing adversity you have to endure, you still have some control over it.” “You don’t have to just to live well,” he advises,” but live an Amazing Life.” The formula he proposes: Faith in yourself, discipline, determination, desire, intensity, and inner strength.


Yes, you touched every person at our conference, who will in turn change and impact so many others. The feedback from our participants was overwhelmingly positive. You are the only speaker to ever receive a standing ovation. Thank you for taking time to share, motivate and inspire. We are blessed to know you.


I will be honest. During the first 10 minutes of your presentation, I started reading work related material on my laptop. For surely, I had watched your You-Tube and seen your videos and knew what to expect. Surely, as a therapist I had studied this disease, the pathological components, the psychological components, the treatment alternatives……..Surely, I understand it.

Not so much. You caught my attention and I was enthralled. You were able to couple the impairments you experience with the emotions felt. You walked us through your life with the disease through “your eyes”. A perspective that a therapist/nurse rarely has the chance to hear. We get so busy telling patients how to deal with x, y and z, but our eyes are blurred by the science of it all most of the time.

You did it through truth, Through your humor, humility and determination to tell your story. One that most deservedly needs to be shared.

I will advocate to have you share your story. I appreciate your determination, diligence and dedication.