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Inspirational Speech on Positively Living with Parkinsons

April 2, 2011

Would love to speak to your group also.

John Baumann, Attorney
TheInspiringEsquire.com
PDSpeaker.com
Proud Person with Parkinsons
502-262-3300

Houston Area Parkinson Society
Annual Educational Symposium
Saturday, April 30, 2011

Houston Area Parkinson Society invites you to attend its 2011 Annual Educational Symposium, “Moving Forward with Parkinson’s: living until a cure is found.” This year’s event will review recent advances in Parkinson’s disease (PD) research and offer helpful, practical information for managing the challenges of living with PD.

Keynote Speaker
John Baumann

An inspirational talk providing insights as to why many care receivers and their families have a difficult time adjusting to life-changing illness, the power of having a positive attitude and the damaging effect of negativity.

MOVING FORWARD WITH PARKINSON’S:
LIVING UNTIL A CURE IS FOUND
8:30 Check-in and Continental Breakfast
9:00 Biomarkers and Genetics
10:00 Break
10:15 Morning Breakout Session
11:15 Break
11:30 Lunch with Keynote Speaker
12:30 Break
12:45 Nutrition
2:15 Break
2:30 Afternoon Breakout Session
3:30 Adjourn

MOVING FORWARD WITH PARKINSON’S: LIVING UNTIL A CURE IS FOUND

Full Audience Sessions
Biomarkers and Genetics
Dr. Joseph Jankovic and Sohini Chowdhury

This two part session on Parkinson’s disease research will focus on recent advances in biomarkers and
genetics. Part one will focus on defining biomarkers and explaining their utility in drug development. Part two will focus on the important role genetic factors play in the pathogenesis of PD and guidelines on how to interpret various genetic tests.

Morning Breakout Sessions
Deep Brain Stimulation
Dr. Richard K. Simpson and Dr. Mya C. Schiess

Learn more about Deep Brain Stimulation (DBS) as an effective form of treatment for some people with
Parkinson’s disease. This session will provide a review of current research on DBS and discuss details of the surgical procedure. Learn how DBS works, who makes a good surgical candidate, which symptoms benefit and for how long, what outcomes to realistically expect and what recent scientific studies reveal about DBS versus best medical management including, benefits and risks.

When you think exercise—think BIG
Betty MacNeill, PT, DPT

There’s no question that everyone needs to exercise, but the added challenge for individuals with Parkinson’s
disease is to decide how much and what kind. Research in this area is on the rise and new guidelines and exercise strategies are emerging. Although many details are still missing, the bottom line is that exercise involving novel movements and physical challenges lead to more benefits in the long run. This session will explore some of these new approaches and provide practice experience for learning
movements associated with the LSVT-BIG® exercise protocol.

Bridging the communication divide: strategies
and treatment options
Terri Haight, MA, CCC-SLP

Studies show 50%-89% of those with Parkinson’s disease experience speech and voice disorders, but only a small percentage receive treatment. This course will discuss low-tech strategies and speech treatment options to improve both communication effectiveness and the communication environment. This session will provide an overview of the components of LSVT®, the gold standard of voice treatment for individuals with PD.

Nutrition
Jackie Nielsen, MS, RD, CDE
This session will highlight nutrition-related concerns and tips to improve quality of life. Learn how Parkinson’s affects the GI tract, how medications effect nutrition and health, and which supplements may or may not help.

Afternoon Breakout Sessions
Sleep well, live well. Understanding the
connection between sleep and PD
Dr. Mya C. Schiess.

Sleep related problems are common in Parkinson’s disease and if untreated, can make living with PD more
difficult. This session will include discussion of good sleep habits along with sleep problems commonly
associated with PD including insomnia, excessive daytime sleepiness, periodic limb movement disorder,
restless leg syndrome, dream enactment or REM sleep behavior disorder and sleep apnea, as well as effective therapies to maintain a healthy sleep cycle.

Love and other drugs in PD: what you need
to know but can’t learn from the movies
Dr. Joohi Jimenez-Shahed

This session will review medications commonly used to treat Parkinson’s disease, discuss treatment goals and approaches, and will provide pointers on effective communication with physicians regarding medication issues. Get the latest information on long acting dopamine agonists; the widely reported Sinemet shortage and Stalevo warnings; and what patients should know about benefits and potential side effects of PD drugs.

Viewing your health through your eyes
Dr. Rosa Tang

Learn about common and special eye problems related to Parkinson’s disease and available treatment options. This session will include information on blurred and double vision, dry eyes, eye movement, visuo-spacial orientation and more. Find out how these issues are different from age-related eye changes, how to
appropriately communicate vision changes and how to seek specialized care for PD specific eye disorders.

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Testimonials

What a wonderful presentation, John! You were wonderful and I am so grateful you shared your story. We were receiving excellent feedback in the chat too:

That was fantastic information, thank you for your candor and humor! Awesome 🤩 talk and info ! Thanks much. It’s hard, thanks for sharing. Thank you for sharing your story and for your positive attitude. It’s important to hear this message. This was just what I needed. Thank you so much. you are an inspiration, thank you!

As we stated, we hit 100 participants at 3:09!

Thank you again,

Eden Feldman, LCSW Associate Director, Community

I do not have the words to thank you enough for making the trip to Dallas to do two presentations for us at CC young. You truly are special and a rockstar and clearly touched many lives today. It is a victory! I was able to run all over campus and welcome guests and host you. It was a victory. Thanks to you for helping me think that way. We will catch you on the next round. Get some rest my friend. Safe travels. And know we love you from CC Young and Dallas!

Patty CC Young and Dallas

“After two years of not being able to hear speakers in person , I was thrilled to have John Bauman as a speaker at our “ Living Well With Parkinson’s’ Gala!. Not only was John engaging and inspiring to get to know off stage , on stage he truly drove home the theme of empowerment to our audience and left our growing community of attendees with several “ aha “ moments and desire to hear more. He spoke from personal experience as a Parkinson’s patient ,inspiring the audiences motivation to truly wish to make a difference and uniting us all in our humanity. Attendees after listening to John , felt inspired to make a difference in the world and do their part to create change for those living with Parkinson’s. My only regret was not being able to spend more time with John and I look forward to having him speak again to our audience.”

Naomi Wong WPP Program Manager

John’s message of hope, inspiration and laughter was ideal for anyone living with PD. He was extremely flexible and a delight to work with.

Leisha Phipps, MSW Program Director - Dallas Area Parkinson Society

We all felt inspired and enjoyed listening to your presentation. Even though we are not living with Parkinson’s, we felt boost of motivation to continue helping those who are living with this disease. I am motivated to make more personal phone calls to people living with PD and asking how they are doing. Sometimes that “extra” bit of kindness truly makes a difference to someone. I am also motivated to research program ideas and partner with other organizations that may have similar values.

I learned that life is unexpected and that you cannot control it. What matters is your attitude!

-Great way to end the day, brave man, thank you very much!

-Good, excellent, great, outstanding speaker, very moving!

-Inspirational who just “gets it”

-Positive thinker and very funny!

-Honest speaker but also humorous!

Parkinson’s Society of Southwest Ontario, Canada, Symposium Keynote Presentation

“whatever hand life deals you, whatever life changing adversity you have to endure, you still have some control over it.” “You don’t have to just to live well,” he advises,” but live an Amazing Life.” The formula he proposes: Faith in yourself, discipline, determination, desire, intensity, and inner strength.

MARY SPREMULLI VOICE AEROBICS

Yes, you touched every person at our conference, who will in turn change and impact so many others. The feedback from our participants was overwhelmingly positive. You are the only speaker to ever receive a standing ovation. Thank you for taking time to share, motivate and inspire. We are blessed to know you.

DIRECTOR OF MARKETING REHABILITATION HOSPITAL

I will be honest. During the first 10 minutes of your presentation, I started reading work related material on my laptop. For surely, I had watched your You-Tube and seen your videos and knew what to expect. Surely, as a therapist I had studied this disease, the pathological components, the psychological components, the treatment alternatives……..Surely, I understand it.

Not so much. You caught my attention and I was enthralled. You were able to couple the impairments you experience with the emotions felt. You walked us through your life with the disease through “your eyes”. A perspective that a therapist/nurse rarely has the chance to hear. We get so busy telling patients how to deal with x, y and z, but our eyes are blurred by the science of it all most of the time.

You did it through truth, Through your humor, humility and determination to tell your story. One that most deservedly needs to be shared.

I will advocate to have you share your story. I appreciate your determination, diligence and dedication.

CHIEF EXECUTIVE OFFICER REHABILITATION HOSPITAL