blogs

Caregiver Article

November 21, 2013

Kentucky: http://www.bgdailynews.com/article_8a5c0121-a82b-52c1-9913-aed4c7c10142.html

Missouri: http://www.dailystarjournal.com/online_features/health_and_wellness/article_79436e73-7631-5276-aefd-33d4a17cb4e9.html

Oregon: http://www.bluemountaineagle.com/online_features/health_and_wellness/managing-parkinson-s-disease-together-john-and-bernadette-s-caregiving/image_5f52d39d-c92e-553b-baf6-5cd57ca76e9d.html?mode=nogs

West Virginia: http://www.exponent-telegram.com/online_features/health_and_wellness/managing-parkinson-s-disease-together-john-and-bernadette-s-caregiving/article_cf0b1461-af7e-5889-816d-18c1b6ce2a6c.html

San Diego, CA: http://scoopsandiego.com/online_features/health_and_wellness/managing-parkinson-s-disease-together-john-and-bernadette-s-caregiving/article_a6999efd-88c3-5660-b45f-b8173763123d.html

National: http://www.healthrender.com/trend/Managing-Parkinson’s-Disease-Together%3A-John-And-Bernadette’s-Caregiving-Journey

Georgia: http://www.franklincountycitizen.com/ara/health_and_wellness/fb06753f-afa6-5c5d-b7db-a9b29ac879ea.txt

Managing Parkinson’s Disease Together: John and Bernadette’s Caregiving Journey
By Brandpoint

Managing Parkinson’s Disease Together: John and Bernadette’s Caregiving Journey
(BPT) – When Bernadette first met her husband, inspirational speaker and attorney John Baumann, she was drawn to his positive attitude and confidence instantly. It wasn’t long after they met that he told her he had Parkinson’s disease (PD), a progressive disorder of the brain and central nervous system that causes a variety of movement problems such as shaking, muscle stiffness and difficulty walking. Bernadette didn’t know much about PD, but that didn’t matter, because as they became closer and eventually married, she began to feverishly research PD and embraced her role as both his wife and his caregiver. As this November marks the 17th annual National Family Caregivers Month, it is a time to celebrate people like Bernadette who dedicate their lives to the well-being of others.

Caregivers play a significant role in helping their loved ones manage PD, and it isn’t always easy. However, Bernadette still believes it is important to find time for herself, and encourages John to participate in activities they both enjoy. Self-described “fitness enthusiasts” Bernadette and John both love exercising together and challenging themselves. A perfect example is when Bernadette once ran the San Francisco half marathon while John rode his bike beside her. When John suddenly got a flat tire, he told Bernadette she would have to run home, get the car and pick him up. “No way, let’s jog together! I will carry you if you ask me to,” she remembers saying. “That’s how we live our lives together. Whether I need help in motivating myself on a day when I’m down, or if he needs a little encouragement, we are in it together.”

Bernadette credits the active role she places in John’s care plan to their success as a couple. “I’ve been with John throughout his PD journey. As a caregiver, I am grateful that through our commitment to each other and with support from the PD community, he has been able to manage his PD.” John’s daily treatment regimen includes a strict vegetarian diet, exercises such as bikram yoga, taking his medications, such as AZILECT® (rasagiline tablets) and levodopa, and maintaining a positive attitude each and every day.

National Family Caregivers Month, along with the surrounding holidays, is a time for all of us to reflect on how thankful we are for our support systems. No one is more appreciative than John. “My life took an unexpected turn when I met and fell in love with Bernadette, but I consider this chapter in my life to be a miracle. I fell in love with a woman who accepted my invitation to experience the rest of our lives together and wanted to share my PD journey.”

Testimonials

“whatever hand life deals you, whatever life changing adversity you have to endure, you still have some control over it.” “You don’t have to just to live well,” he advises,” but live an Amazing Life.” The formula he proposes: Faith in yourself, discipline, determination, desire, intensity, and inner strength.

MARY SPREMULLI VOICE AEROBICS

Yes, you touched every person at our conference, who will in turn change and impact so many others. The feedback from our participants was overwhelmingly positive. You are the only speaker to ever receive a standing ovation. Thank you for taking time to share, motivate and inspire. We are blessed to know you.

DIRECTOR OF MARKETING REHABILITATION HOSPITAL

I will be honest. During the first 10 minutes of your presentation, I started reading work related material on my laptop. For surely, I had watched your You-Tube and seen your videos and knew what to expect. Surely, as a therapist I had studied this disease, the pathological components, the psychological components, the treatment alternatives……..Surely, I understand it.

Not so much. You caught my attention and I was enthralled. You were able to couple the impairments you experience with the emotions felt. You walked us through your life with the disease through “your eyes”. A perspective that a therapist/nurse rarely has the chance to hear. We get so busy telling patients how to deal with x, y and z, but our eyes are blurred by the science of it all most of the time.

You did it through truth, Through your humor, humility and determination to tell your story. One that most deservedly needs to be shared.

I will advocate to have you share your story. I appreciate your determination, diligence and dedication.

CHIEF EXECUTIVE OFFICER REHABILITATION HOSPITAL